By Trisha Torrey, from Verywellhealth.
What rights do American patients have as they navigate through the American healthcare system? You have rights that are granted and enforced by law, such as the Health Insurance Portability and Accountability Act (HIPAA). You also have rights that stem from the ethical practice of medicine and basic human rights.
Let’s take a look at your rights.
The Right to Be Treated with Respect
All patients, regardless of their means or health challenges, should expect to be treated respectfully and without discrimination by their providers, practitioners, and payers.
The Right to Obtain Your Medical Records
The HIPAA Act of 1996 provides patients in the United States a right to obtain their medical records, including doctors’ notes, medical test results and other documentation related to their care.1
The Right to Privacy of Your Medical Records
The HIPAA Act also outlines who else, besides you (the patient), may obtain your records, and for what purposes. Patients are often surprised about who has these rights. Access may be denied to people you might think would have access. Improper access has consequences.
The Right to Make a Treatment Choice
As long as a patient is considered to be of sound mind, it is both his right and responsibility to know about the options available for treatment of his medical condition and then make the choice he feels is right for him. This right is closely associated with the Right to Informed Consent.
The Right to Informed Consent
No reputable practitioner or facility that performs tests, procedures or treatments will do so without asking the patient or his guardian to sign a form giving consent. This document is called “informed consent” because the practitioner is expected to provide clear explanations of the risks and benefits prior to the patient’s participation, although that does not always happen as thoroughly as it should.
The Right to Refuse Treatment
In most cases, a patient may refuse treatment as long as he is considered to be capable of making sound decisions, or he made that choice when he was of sound mind through written expression (as is often the case when it comes to end-of-life care).
There are some exceptions, meaning that some patients may not refuse treatment. Those exceptions tend to occur when others are subsidizing the patient’s income during the period of injury, sickness, and inability to work.
The Right to Make Decisions About End-of-Life Care
Each state in the United States governs how patients may make and legally record the decisions they make about how their lives will end, including life-preserving measures such as the use of feeding tubes or ventilators.
Corresponding to these patients’ rights are a number of patients’ responsibilities. There are also some rights Americans think they have as patients that are missing. It’s important that you are aware of all of these so that you can be sure to take steps to ensure the care you need, want and deserve.
If you believe your patients’ rights have been violated, you can discuss it with a hospital patient advocate or your state’s department of health. Stand up and exercise your patient rights.
ACA Patient’s Bill of Rights
On June 22, 2010, President Obama announced new interim final regulations, the Patient’s Bill of Rights, that include a set of protections that apply to health coverage starting on or after September 23, 2010, six months after the enactment of the Affordable Care Act.
The Departments of Health and Human Services, Labor and Treasury collaborated on the Patient’s Bill of Rights – which will help children (and eventually all Americans) with pre-existing conditions gain coverage and keep it, protect all Americans’ choice of doctors, and end lifetime limits on the care consumers may receive. These new protections create an important foundation of patients’ rights in the private health insurance market that puts Americans in charge of their own health.